What Lipoedema can look like

Ok so I thought i’d share some pictures of what Lipoedema can look like, but keep in mind that not everyone is at the same level and shapes and sizes really can vary.

This is an example:

Pho1B9D20150722_134109000_iOS 20150722_133605000_iOS  notice the ankles, it’s called an elastic band effect, where there is no shape to them at all, not everyone with Lipoedema looks this way. Also notice the pitting texture to the skin, very bumpy. The size is a lot larger than normal which can be difficult to wear knee high boots or wellies etc.

20150722_133338000_iOS 20150722_133152000_iOS 20150722_133914000_iOS  These are the compression tights I had made for me, they are made to fit (although they have had slight movement during the course of the day so don’t look exactly fitted, whoops). I decided to opt for high waisted tights because it feels more comfortable, I also have open toed tights too. Sorry about my black feet, it’s dye from my shoes. They are very thick so can get very warm. It is recommended that you put them on first thing when your legs are cold (as they can swell during the day). They can be tough to get on, especially the first few times. If you have ever watched the US series Friends, the episode where Ross wore leather trousers and couldn’t get them back on, the struggle can be very similar, and sometimes I get the OH (other half) to help me! There have been many a times where he has broken a sweat just to get the darn things on! I recommend getting a stocking applicator, they help a lot.

I can’t say I have seen any reduction even though my OH says they look smaller. I should have really measured before wearing them. I have been wearing these every day for around 3 months now, I swap between alternate pairs so I can wash them. Eventually I will get remeasured and given more pairs if these ones don’t fit anymore. I know they aren’t appealing and you can get very hot in them but remember, they are to help you.

Last year I would never have let anyone but immediate family see my legs, but now I feel I need to spread the word and because pictures are needed to do so, then so be it. I’d rather help somebody recognise this and seek medical advice than to keep hidden away.

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11 thoughts on “What Lipoedema can look like

  1. Well done Fay, you would never have let anyone see your legs before setting this blog up.. well done very proud of you xxxx

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  2. A great blog, Fay ! It brought back many childhood memories.

    I also had problems in my youth with big legs and funny arms. I have hated them all my life mainly due to the taunts and odd looks. I often cried over them in bed and I made excuses to avoid dances and tried to avoid going anywhere where my legs would be plainly seen. At the time I was told it was puppy fat and I would grow out of it. Much later, after my first child, I was told it was fluid and given diuretics to “reduce the swelling “. Discussing it with various GPs I have been told to diet over and over again and of course it never worked. Little did I know that I had Lipo/lymphoedema and as many GPs have never heard of Lipodema. I must have been about 60yrs of age when quite by chance I saw a GP who had an interest in the subject. Later his suspicions were confirmed. I am 66 now and in stage 3 of the disease.

    I too wear compression from toe to waist, as well as both arms and hands. My dear husband helps me put them on as I cannot do it myself. It is a cruel disease in many ways, not only because of the aches and the constant pain (in my case) in my hands,arms and legs, it makes finding shoes and clothing very difficult and expensive. These problems in turn cause a huge loss of confidence that is hard to cope with at times . Everything becomes so much harder to achieve and pleasures such as impulse buying are denied as, if like me, you know they won’t cater for your size. I am forced to buy a size 24 in a top even if it is too big around my trunk as I need the larger cut of the sleeves to fit my arms.

    You may like to add another place to go for support on your blog. On Facebook is a private group called Talk Lipodema Private Chat.They also have an open Facebook page and a web site. This is a UK based charitable organisation that is active across the UK. They also do a lot to create awareness.You will find a very warm welcome there with lots of information, sharing and support. I would be lost without it and the lovely ladies on there ! I wish you all the best, Fay. May your days be bright and pain free on your lippy journey.

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    1. I’m sorry to hear it took so long before you were diagnosed. I think if I had known at a younger age I wouldn’t have been as self concious thinking I was the only one. Since starting this blog I have found I can relate to so many people and I have never felt so normal!
      Thank you for referring the facebook page, I will be certain to add it to the list 🙂
      Thank you for your reply Carole, take care.

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  3. Great blog Fay. I also have lipoedema, stage 3 type 4 (advanced stage and full arms and legs affected). Thanks for signing and sharing the petition. I hope we can get enough signatures to get noticed by the politicians and finally get some choices and treatments in place. June xx

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